Wednesday, January 9, 2019

Our Chiari Journey

It's always a humbling and "fearful" thing to stand in the room of a person who literally held your child's life in their hands.

Makes me nervous everytime.

It wasnt a case assigned to her, she could have been having a bad day and not been alert when walking through radiology 10 years ago, but God orchestrated her presence at the right time, when Carsons images were lit and she found his(at the time) very rare malformation for an infant. After 11 months of searching for answers, she had them.

 She gets a ton of reverential fear in my book.

Kind of made me thing of the way we should revere God who holds our life in his hands, even more so than a brain surgeon.

Today, we got to see her again and left with hugs and relief. She says Carsons MRI looks amazing, no need to worry about another surgery at this point.

Anything else that may be causing his symptoms is small beans in comparison to this so we are very relieved.

We will still see many specialist in the coming months but just knowing it isnt Chiari is enough for now.

We will forever be indebted to Dr. Ackerman and her thoroughness.

We can not speak more highly of her!

She printed Carson pictures for fun and I added notes so you can tell what your looking at!
Now healthy brain
11 years old

Unhealthy, squished brain
11 months old


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